**Remembering Rev. Jesse Jackson: A Pioneer in Civil Rights and Awareness of Progressive Supranuclear Palsy (PSP)** We are saddened to hear about the passing of Rev.
**Remembering Rev. Jesse Jackson: A Pioneer in Civil Rights and Awareness of Progressive Supranuclear Palsy (PSP)**We are saddened to hear about the passing of Rev. Jesse Jackson, a civil rights icon and two-time U.S. presidential candidate, at the age of 84. His legacy extends far beyond his contributions to social justice; he also helped raise awareness about progressive supranuclear palsy (PSP), a rare neurological disorder.
Rev. Jackson's diagnosis with PSP in 2025 revealed that the condition is often misidentified as Parkinson's disease due to its early symptoms. However, PSP progresses more rapidly and affects eye movement and balance from the outset. This distinction highlights the importance of accurate diagnosis and treatment for individuals living with PSP.
As a pioneer in civil rights, Rev. Jackson's unwavering commitment to justice, equality, and human rights inspired a global movement for freedom and dignity. His openness about his diagnosis has brought national visibility to PSP, emphasizing the need for greater public awareness, earlier detection, improved treatment options, and ultimately, a cure.
What is Progressive Supranuclear Palsy (PSP)?
PSP is a rare neurodegenerative disorder that affects areas of the brain involved in movement, balance, eye control, speech, and thinking. The condition gradually worsens over time, typically diagnosed in people in their 60s or 70s. Common symptoms may include:
- fatigue
- stiff neck
- general muscle stiffness
- sensitivity to bright lights
- blurry vision or trouble focusing the eyes
- irritability or mood shifts
- impaired judgment
- difficulty moving the eyes, especially looking up or down
- difficulty keeping balance
- repeated falls (often falling backward)
- involuntary shaking of limbs, hands, or feet (tremors)
- slowed down or awkward movements
What causes PSP?
PSP is associated with the buildup of a misfolded form of a protein called tau in certain brain cells. Researchers don't yet fully understand why this protein buildup occurs, but most cases appear to develop sporadically, meaning they are not inherited.
We honor Rev. Jackson's legacy by continuing to raise awareness about PSP and its effects on individuals and families affected by the condition. If you or someone you know is experiencing symptoms of PSP, please consult with a healthcare professional for proper diagnosis and treatment.
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